He lifts her up in his arms, in turn taking her arms and hooking them around his neck. Her limb body hangs close to his heart, his one hand around her waist in her pink top. His other hand at the back of her head holding her eyes locked to his. And then they dance. He looks upon our daughter and smiles…In this moment time stands still and unconditional love becomes visible.
Looking at her small fragile frame against her daddy’s broad chest, and his big hands securely holding her up in the air leaves me deeply grateful. Grateful that His grace carried us these past almost 20 months since the accident. Grateful that even though her recovery is slow it is still steady and surpassing all initial grim prognosis. Mostly I am grateful for Faith!
In many ways I have become quieter, more pensive and less ‘wise’ as a result of this journey. I do not pretend to have the answers to life’s philosophical quests. My heart is more exposed for all to see and the range of emotions I am capable of in a day is quite astounding! But I have learned to celebrate the small things and to keep on trying. Holding my head up high…
Juneldé is growing tall and gaining weight. She looks healthy and has a good colour to her skin. We cut her hair and she now sports a cute fringe. She is eating food orally and manages to chew and swallow foods like spaghetti bolognaise, mushed chicken and Flings chips. At a time she can manage up to 20ml of water or juice before it runs down the wrong pipe and leads to a fitting cough. She has better conscious control of her body and it is easier to carry her, sit her and dress her than before. She is very quirky with her ‘yes’ and ‘no’ blinking answers and I find that we laugh a lot at her antics when interacting with her…Her intelligence is also shining through and she needs constant mental stimulation. We find it challenging to accommodate this need with her immobility; however rejoice the fact that it is there.
She also craves social interaction and new environments. If I think back at a time when she was so sensory sensitive that she couldn’t process any outside stimulation this in itself is a miracle. She has invented lots of ways to communicate her needs to all around her, even though she’s not yet verbal. She is however loud! Packing out an array of cries and moans that gets us all jumping to assist.
Miley Cyrus sings a brilliant song about The Climb. A song that encompasses my deepest yearning dreams and daily refrain. Because of Juneldé we are staying strong, pushing on and keeping the faith…
The Climb
I can almost see it
That dream I’m dreaming but
There’s a voice inside my head sayin,
You’ll never reach it.
Every step I’m taking,
Every move I make feels
Lost with no direction.
My faith is shaking but
I got to keep trying
Got to keep my head held high.
There’s always going to be another mountain,
I’m always going to want to make it move.
Always going to be an uphill battle,
Sometimes you’re going to have to lose.
Ain’t about how fast I get there,
Ain’t about what’s waiting on the other side.
It’s the climb.
The struggles I’m facing,
The chances I’m taking
Sometimes they knock me down but
No I’m not breaking.
The pain I’m knowing
But these are the moments that
I’m going to remember most yeah
Just got to keep going
And I,
I got to be strong
Just keep pushing on.
There’s always going to be another mountain,
I’m always going to want to make it move.
Always going to be an uphill battle,
Sometimes you going to have to lose.
Ain’t about how fast I get there,
Ain’t about what’s waiting on the other side.
It’s the climb.
Keep on moving,
Keep climbing,
Keep the faith baby.
It’s all about
The climb
Keep your faith.
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